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Formaldehyde

Hi everyone, 

I haven't posted in quite awhile, but I visit often to see whats up. 

Please check out the latest news about the US EPA and how it relates to Leukemia.

https://www.politico.com/story/2018/07/06/epa-formaldehyde-warnings-blocked-696628

Aside from being deeply embarrassed and sorry about whats happening in my country and its effect on the world at large, I'm doing well.

My last PCR was .17 IS at eight and a half months since DX. I'm getting another PCR draw next week and if all goes well I will 

lobby for a dose reduction. Currently on 70mg Dasatinib daily, hoping to go to 50mg for 90 days and then down to 20mg.

Huge thanks to everyone that posts regularly. All the info and encouragement is a vital lifeline.

Cheers!

 

Riggered

    

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Another big one is gas stoves or a kerosene space heaters, one by-product that is released is Formaldehyde. 

 

https://www.bustle.com/p/7-household-products-that-may-contain-formaldeh...

Thank you for this. Interesting. Riggered, you are doing great!

As a fellow US citizen, I must say that I share your embarrassment and regret about what's happening here. If it is possible to love one's country deeply and yet be horrified by its current government, that is where I stand. We have visited London and surroundings twice in the last few years and plan to return next spring. We joke that we are trying to figure out how to get stuck there -- and not just because of NHS!

As to these studies on causation (or perhaps correlation), it would be good if there could be more research done on causes. I have been wondering for 15 months if an institution will ask me to participate in a study to understand why we have gotten this disease. Treatment and cure are more important, but a bit of research into causes would be wonderful, and I have seen no evidence of anything like that. We seem mostly unaware of why some people get it and some don't, even though exposures to carcinogens are similar among people living in the same geographic area. Is it simply a chromosomal weakness, a fluke that some people get it? Is it pointless to study carcinogens, behavior, medical history, etc. because it's basically just a fluke?

I am also very grateful to this site. Thanks to all who participate and manage!

 

Hi Justine ,I too was wondering if ever there has been a survey or questionnaire we can contribute to because I have blamed all sorts of things for my CML. Buying a more powerful microwave,installing a Halogen hob in my new kitchen ,spraying perfume and body sprays directly on my skin which I don’t do any more I only spray on my clothes now ,stupid maybe but it’s what I do .Iam more careful using things like weed killer ant powder etc. and don’t let my cat lick my skin .The list goes on what is it we all have in common ,I haven’t had that many X Rays or scans in my life ,I have always been healthy and never one to pop pills unless really necessary.If only we knew.Enjoy your trip to London in the Spring I am going in October for the first time and I live in the UK near Liverpool.I wish you had an NHS so you could get your treatment I feel for you having to pay so much in  the USA .Keep well .Denise.

I really liked this site until this political crap. It has no business here. Take your political grief elsewhere, I don’t appreciate it. I do appreciate the outstanding feedback regarding CML though.

I am sorry to have posted something political. I, too, want a good place for CML info and don't want to alienate anyone. Consider me admonished, and I will not post extraneous comments like that again. Thank you for making that important point. Justine

Thank you, Denise. It is probably not useful for us to try to figure out how we got it -- though I do the same! (My biggest worry is that whatever caused it in me will also affect our sons in future, even though I know -- as far as we know! -- it is not inherited.) You will love London. A truly great, lovely, beautiful city! Take care. Justine